Privacy Policy – Be The Cure

The Northern Alberta Clinical Trials and Research Centre (“NACTRC”), a joint venture between Alberta Health Services Edmonton Area and the Governors of the University of Alberta, respects and is committed to protecting your privacy and allowing you to make informed choices about your privacy. We created our privacy policy to explain how we collect, use, and protect your personal information online. By using this website, you agree to the terms of this privacy policy.

BeTheCure.ca (“the website”) contains links to other websites. NACTRC isn’t responsible for the content and the privacy practices of other websites. We encourage you to examine each website’s privacy policy and disclaimers and make your own decisions about the accuracy, reliability, and correctness of the material and information you find there.

INFORMATION COLLECTION

This website doesn’t automatically gather any personal information from you. We can only collect this information if you provide it voluntarily by signing up for our email newsletter, contacting us via email or through an online form, or updating your personal information in the Alberta Patient Engagement Registry.

This website isn’t meant to be used by anyone under the age of 13, and we won’t knowingly ask for their personal information.

PERSONAL INFORMATION

Personal information could include the following.

First and last name
Age
Sex
Phone number
Email address
Postal code
Ethnicity/diversity
Your role in the health care system
Your interest in a particular research opportunity or group
How you learned about this website or its associated platforms
Your Alberta Patient Engagement Registry account creation and/or deletion date

You could also search the clinical research database or the Alberta Patient Engagement Registry for a specific medical condition, but this information isn’t directly associated with your personal information. However, we understand that these searches could be for research purposes, on behalf of another person, or for other reasons, so your searches aren’t directly associated with the personal information you provide to us.

NON-IDENTIFYING INFORMATION

In general, you can visit this website without revealing any information about yourself. However, when you visit the website, our web server automatically collects a limited amount of non-identifying information about your online visit to create statistics about how our visitors interact with us online. These statistics don’t contain any personal information, so they aren’t associated with you as an individual, and they’re used only by our staff.

We may also collect the following anonymous visitor data about your time on our website. We collect and use this information to help us understand your needs, preferences, and usage so we can make this website more useful. We may share this data with our partners or advertisers for analytics purposes, but it won’t be linked to you in any way.

Internet domain and Internet Protocol (IP) address from which you access this website
Type of browser and operating system used to access this website
Date and time you access this website
Screen resolution of your monitor
Pages you visit on this website
Other website links, if any, that linked you to this website

When you access this website, a cookie is automatically placed on your computer’s hard drive to identify you to the website, control access to certain content, and deliver content specific to your interests. It also records the above information about your activities on this website.

A cookie can’t be used to access or otherwise compromise the data on your hard drive. You can always choose to change your browser settings to disable cookies, but this may limit your ability to perform certain functions on this website.

INFORMATION USE

As a data controller, Be The Cure determines how and why we process your personal information. If you choose to provide us with your personal information through this website, we’ll use it only for the following purposes.

Get back to you after you contact us by form, email, or phone
Send you emails if you subscribed to our newsletter
Send you emails for issues related to your Alberta Patient Engagement Registry account (if you signed up for one), such as password resets, support, or critical account problems
Ask for your participation in occasional surveys
Make your user experience more personalized
Make improvements to the website based on your feedback
Improve the information and services on the website
Enforce this privacy policy

If you give us your email address and opt in to join our mailing list, we’ll send you research updates and other communications related to the purposes outlined above. We comply with Canadian Anti-spam Legislation (CASL), and so does our email provider MailChimp.

If you no longer want to receive research updates and other communications, you can click the “Unsubscribe” link at the bottom of our emails. This will immediately remove you from our mailing list. Please note that you might still receive personal, non-marketing emails from a researcher or a member of the Be The Cure team.

We won’t sell, rent, trade, transfer, or give your information to anyone who isn’t part of the Be The Cure project team. We do use third-party services for activities like distributing newsletters. However, we’ll only share your information with these third-party services and send you the appropriate content if you’ve given your consent.

If we plan to use your personal information for a purpose not outlined above, we’ll tell you what that purpose is at the time we collect your information. That way you will be aware of our intent and can give your informed consent.

This policy doesn’t cover situations where we’re required by law to share your personal information with law enforcement or government agencies.

INFORMATION MANAGEMENT

We’ll manage your personal information according to the Freedom of Information and Protection of Privacy Act (Alberta). This personal information will be kept strictly confidential, and we won’t disclose it to anyone except to NACTRC staff who need it for legitimate business purposes like responding to your submitted request. We don’t trade or sell information to second or third parties.

You have the right to confirm if we process your personal data and can ask for the following.

A copy of the personal data we process
The reasons why we process this data
The types of data we process
How long we’ll store this data
The names of any third parties providing or receiving this data
Protection measures in place during data transfer

You also have the right to correct or erase our records of your personal data by emailing us at btc-project@habithq.ca, and you can restrict or object to the way we process your personal data. If you have any concerns, you can register a complaint with your local supervisory authority.

This is just a summary of the data protection rights you have under current data protection laws. To learn more about your rights, look for the guidelines from your local regulatory authorities.

INFORMATION STORAGE

All of the personal data that we collect is stored in Canada, which may not have the same data protection laws as the country where you live.

Some user behavioural data may be collected through Google Analytics and will be stored within their network as outlined in their own privacy policy. As with any other behavioural information collected online, yours may be processed, stored, and used outside of the country where you live. Data privacy laws vary and may apply differently to your data, depending on where it’s processed, stored, and used.

INFORMATION SECURITY

We use modern data collection and security practices to keep others from accessing, changing, sharing, or destroying our stored records of your personal information without your permission.

We don’t store passwords associated with the Alberta Patient Engagement Registry on our server. Instead we use a mathematical representation of your password, which is called a hash. Because of this, if you lose your password, we won’t be able to reset it for you. However, you can reset your password yourself using your email address.

All communication between the server and any clients is performed over HTTPS in order to keep your data safe in transit.

For website security purposes, NACTRC employs software programs to monitor network traffic that identifies unauthorized attempts to upload information, change information, or otherwise cause damage. Except for authorized law enforcement investigations, no other attempts are made to identify individual users or their usage habits.

If a data breach ever does occur, we’ll tell you within five business days so you can take any action that might be needed.

POLICY UPDATES

We may choose to update this privacy policy at any time. We recommend reviewing it on a regular basis to stay updated about how your personal information is being collected and used.

CONTACT US

If you have any questions or concerns about our privacy policy, contact us at btc-project@habithq.ca or the address below.

NACTRC
400 College Plaza
8215 112 Street
Edmonton, Alberta T6G 2C8