WHAT TYPES OF OPPORTUNITIES ARE THERE?
Explore the different levels of engagement below and find out how you can take part.
1. LEARN
Get started by attending an orientation or information session. In this open setting, you can get answers to your questions and find out how to take part.
2. PARTICIPATE
Join a health research study as a subject or participant. These studies include observational studies, interventional studies, and other types of data-gathering studies.
3. CONSULT
Share your thoughts about specific research activities by joining focus groups, taking part in priority-setting activities, or acting as a member of a working group or expert panel.
4. INVOLVE
Become an active, engaged member of a standing working group or research advisory committee and work directly with a research team throughout their project.
5. COLLABORATE
Shape the way research is conducted by acting as a co-investigator, by being equal partners with a researcher, or by joining a research steering committee.
6. LEAD/SUPPORT
Support and direct research activities by co-leading activities and projects with researchers or by joining patient or community steering committees.
WHY SHOULD I PARTICIPATE?
As a research partner, you can use your stories, experiences, expertise, and knowledge to help researchers decide what to study. This means research findings are more relevant to patients, investigators, health care administrators, and policy makers. These research findings can also improve care coordination in the health care system.
When you partner in health research, it changes the way you interact with our health care system. You can ensure that researchers are studying issues and conditions that are meaningful to you. Participation allows you to explore what your role as a patient can and should be, and it helps you become an advocate for your health and the health of those you care about.